Things to bear in mind are as follows:
- BEFORE BOOKING
Holiday plans should ideally be discussed with the Specialist Metabolic Team. Some destinations might be less suitable than others, especially for young children with GSD. Sometimes, a trip to a particular location might simply need extra planning
If you are travelling overseas, you should obtain a letter from the Specialist Metabolic Centre confirming the diagnosis of GSD, and explaining the need for any special dietary and/or medical supplies.
You might find yourself having to explain GSD to somebody who has never heard of it before. They may not even speak the same language. Packing a folder which contains all the relevant information on GSD (condition information, details of emergency regimen, etc) can be very helpful. Don’t rely on having internet access!
- LOST LUGGAGE
You should split your essential supplies between hand and hold luggage. This gives extra peace of mind if your hold luggage goes missing.
- ORDERING SUPPLIES IN ADVANCE
Sometimes it can take time to obtain feed or equipment supplies so it is best to order adequate supplies well in advance of going away. The Specialist Team can help with this - the more notice they are given the better.
- MAKE SURE YOU HAVE APPROPRIATE TRAVEL INSURANCE
If you are unfortunate enough to become unwell when you are away, appropriate insurance should help cover you financially for any illness-related expenses.
Even if going on a shorter trip by train or car, it pays to carry some snacks with you in case you are unexpectedly delayed.