GSD and Me
Welcome to GSD and Me! We designed this UK website with people like you in mind:
- Individuals with a liver glycogen storage disease (GSD)
- Friends and families of individuals with a GSD
- Anybody else (such as teachers, youth leaders and employers) who needs reliable information on GSD.
Leading healthcare professionals in GSD have checked the contents of this website. They will also review it on a regular basis. In this way, you can be confident that what you read is based on up-to-date clinical knowledge.
We want this website to be a living resource for you. As well as providing information, we want to hear your feedback (and your stories!) so that the website can grow with the needs of the UK GSD community.
Special thanks to the GSD team in the Evelina Children’s Hospital, London for their invaluable input in the development of this website.
Vitaflo is proud to sponsor this website.
Management of GSDs
If you have any of the liver GSDs, the main aims of management are to prevent you experiencing hypoglycaemia (low blood glucose level) and to help you achieve normal growth and a healthy lifestyle. In a lot of cases, all of this can be successfully achieved through careful dietary control. In some cases, you may need medications or other medical treatments alongside your dietary management.
Living with GSD
With modern-day management, having a liver GSD should never hold you back from living a full and active life. The key to success is being prepared. This includes making sure you have all the information required for the different aspects of your life.
My GSD Adventure
If you or a family member has just been given a diagnosis of GSD, you may be feeling uncertain. This section of the website is dedicated to individuals and families sharing their experiences of GSD including any challenges they face and how they overcome them.
With GSD being so uncommon, you may not know anybody else affected by it. Support groups can be invaluable in helping you reach out to others with GSD. In addition to supplying both online and physical resources, they can provide links, though both their meetings and their helplines, to the wider GSD community. Contact details for some of the major GSD support groups in the UK are listed below;